Participant Advisory Board

The volunteer Participant Advisory Board (PAB) was created to connect the community with investigators to have representation of specific communities that have experienced a particular disease. This collaboration between participant volunteers and researchers allows for the exchange of ideas and for GHUCCTS investigators to apply the community feedback into the planning, recruitment, implementation, evaluation, and dissemination of clinical research studies. The mission of the PAB is to advance safety and excellence in scientific research through the representation of a varied perspective from community members in the research process.

Accomplishments of the Volunteer Participant Advisory Board (as of Jan 2020)
                                                                                                                                                                                                                            

• Provided input during updates for the GHUCCTS Recruitment Core website: www.WePartner4Research.org
• Identified language services as a high priority area and recommended translation of website content to comply with existing language access regulations.
• Developed the mission and vision statement of the board.
• Provided feedback on the "Community Outreach for Participant Recruitment & Community Engaged Research". Presentation was revised based on feedback and successfully presented at a local community event.
• Provided feedback on feasibility of recruitment strategies through the "Recruitment Studio" consultation session for 14 studies and 15 “Research 101” sessions.
• Attended the NCATS Day 2018 meeting held at the National Institutes of Health and served as a panelist on the “Engaging Patients and Communities for Smarter Science”.  
• Participated in a focus group to provide feedback regarding effective strategies for engaging the African American community in research.
• Exhibited at the Aware for All event, hosted by the Center for Information & Study on Clinical Research Participation (CISCRP) and shared information about GHUCCTS current research studies and resources.
• Reviewed the proposal submission for the GHUCCTS Pilot Grant program funding mechanism where community engagement was designated as a priority area and assessed evaluation criterion from a patient engagement lens.
• Developed PAB promotional videos to highlight the role and significance of the board. Videos were vetted by the GHUCCTS Steering Committee, Community Advisory Board and PAB in support of the final product.

Benefits of joining the Participant Advisory Board

• You'll contribute to ensuring the community voice is heard and influence research processes.
• You'll provide feedback to researchers at all stages of research, including developing a recruitment plan.
• You'll learn about research through the monthly "Research 101" series.

​Interested in joining? Complete the form below if you are a patient, or family member of a patient, who has engaged in a research study and you're willing to share insight about your experiences.

The PAB is also available to provide feedback to researchers. Visit our Recruitment Center Services page for more information.